Just about every day since I was diagnosed with IH, I have taken Nuvigil. My doctor said it would help. It has been the better part of a year, and I have been wondering exactly how much it is helping.
Well, I am a teacher. It is an exhausting job, especially since I am new to teaching, and have no background in it other than my area of expertise. When I first started, all I did was teach and sleep. These days, I teach, do things, then sleep - more like people without narcolepsy or IH. But I do take naps occasionally, and if I do not get enough sleep, I will still fall asleep throughout the day. So, I was starting to really wonder what kind of difference the medicine was making.
One day, I forgot to take my Nuvigil before going to work. Luckily, this was after I started drinking coffee. So, throughout my day, I had 3 cups of black coffee, knowing I would be tired that day. I figured 3 cups would be equivalent to the meds (in a very non-scientific way). So, I got home from work that day, and I fell asleep on the couch napping for a couple of hours. That was fine, I figured it was par for the course having missed my dose. Here is where I realized how much different my life had been before I started on the medicine.
Only a couple of hours after my long nap, while fully dressed still in my work clothes, I fell asleep for the night - it was 8:30 pm. I couldn't even wake myself up long enough to change for bed. Then when it was time to get up for work the next day, I had a very hard time (which is still typical).
I felt as though I had completely missed a day. It was a little bit of a shock to remember what my life had been like before my diagnosis. But one thing I realized is that I am very thankful drugs like this exist! Even though I am still tired and I still nap a whole lot, the meds are actually helping. Subtle, but life-changing!
I just came across your blog (I have narcolepsy without cataplexy, diagnosed about three years ago). This post is exactly how Nuvigil works with me! In the beginning, I expected/hoped for a "miracle cure" as soon as I started the meds. I then proceeded to be discouraged, as I was still tired and needed to nap a few times a week. But then I thought about it... I WAS napping up to four hours a DAY. So, yeah, Nuvigil helps. It doesn't fix everything (but nothing does), but it definitely helps.
ReplyDeleteThanks for this post, it made me feel a lot less alone :)
Nicole, 24
Hi Nicole,
ReplyDeleteThanks for your comment! That is just what I'm going through. Sometimes it's a relief to know I'm not the only one.
I apologize for my late reply. I tried to respond right away, but my iPhone failed me.
Sleep well!
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